Cora Kuhn is a 5-year-old girl from Verona who loves Disney movies, singing and dancing. She loves to swim in the summer, and ...

PERKASIE, Pa. (CBS) -- This holiday season is extra special for a Bucks County family learning to live with a rare disease. New research is allowing the family to enjoy the holiday with their little ...

Dravet syndrome affects about 1 in 17,500 children. Having two daughters with the condition is “extraordinarily uncommon.” ...

Stoke Therapeutics is developing a drug designed to reduce seizures and restore some of their lost developmental function.

Early trials led by Great Ormond Street Hospital and UCL found the treatment cut seizures by up to 91% and showed potential benefits for behaviour and development. The findings, published in The New ...

Early studies show zorevunersen may reduce seizures and improve outcomes in Dravet syndrome. Learn more about the studies.

SANTA ROSA, Calif. (KGO) -- A Santa Rosa family that made national headlines seven years ago when a judge allowed their daughter to receive cannabis oil to stop seizures in school, is now, again, ...

ATLANTA -- Young children with Dravet syndrome improved dramatically with a novel gene therapy, according to initial results from a phase I/II trial reported here. Among three children followed for at ...

ST. LOUIS — The 7th Annual Dance for Dravet is just around the corner, taking place on September 26th at the Third Degree Glass Factory. Hosted by the Brennan family in honor of 8-year-old Anna Odlaug ...

– New data include 24-month results from the largest and longest prospective natural history study of children and adolescents with Dravet syndrome, which showed a lack of improvement despite ...

Employees at the Home Depot in South Lakeland hold Warrior Wednesdays to honor Nova and Denver Smith and other children with ...

Encoded Therapeutics has linked its Dravet syndrome gene therapy ETX101 to a 78% reduction in seizures, keeping the biotech on track to start a pivotal study next year. The Californian company’s ...