LACKAWANNA COUNTY, Pa. — Seven-year-old Cael Hill of Roaring Brook just started kindergarten this year. "He is very into dinosaurs and Spider-Man. Your typical little boy in terms of his interests, ...
After raising $52,000 with a 5K last year to fund research into their son’s rare seizure disorder, Matthew and Reagan Hill hope for similar success at “Cael’s Climb” at McDade Park on Sunday. Cael ...
ST. LOUIS — The 5th annual Dance for Dravet took place on Friday, October 6th at Third Degree Glass Factory in St Louis, Missouri. Started in 2019 by the Brennan and Odlaug families, the event was ...
Beyond seizures: With experimental drug, Stoke aims to restore developmental loss in Dravet syndrome
Stoke Therapeutics is developing a drug designed to reduce seizures and restore some of their lost developmental function.
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Surbiton family back UK wide campaign for greater awareness of rare condition which affects their daughter
A Surbiton couple, whose 9 year-old daughter has Dravet Syndrome, a rare, life-limiting, form of epilepsy, are backing a UK-wide campaign to raise awareness of the condition to help improve diagnosis ...
The Dravet syndrome community is invited to share videos highlighting the sounds of their everyday life with fewer seizures on FINTEPLA ® (fenfluramine). The project will display a gallery of videos ...
A new experimental drug is showing remarkable promise for children with Dravet syndrome, a severe genetic form of epilepsy. In clinical trials, the treatment zorevunersen cut seizures by as much as 91 ...
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